My Sister Was A Match In April, And Mom Drove Her To Every Test

Daniel Foster

My mother swore she’d be at the transplant unit doors the day I walked out on a new kidney, then texted an hour before, “It’s a hallway, Margo, you can manage a hallway without us.” My doctor watched me read it. Twenty minutes later he chased me across the lobby with a page that had my sister’s name on it.

For nineteen months a machine did the work my kidneys had quit on.

Monday, Wednesday, Friday. Four hours a chair. Two needles in my left forearm, every single time.

I was allowed thirty-two ounces of fluid a day. That counted soup. That counted ice.

Some nights I held a cold can of ginger ale against my neck and never opened it.

The TV at the clinic only ever showed people bidding on houses in other states.

My mother lives eleven minutes from that clinic.

She came once, in the first month, and left during hour two because her parking meter was running out.

Shauna said the chairs gave her a headache.

Jason said he’d come once work slowed down.

Work never slowed down.

So I quit asking.

Then at 3:40 one Tuesday morning in September my phone lit up with a number I didn’t know.

“Margo, it’s the transplant office. We have a kidney. How fast can you get here?”

I drove myself.

Five hours of surgery. Nine days up on the fourth floor.

On day eight Dr. Valdez stood at the foot of my bed with my labs and actually smiled.

“Thursday,” he said. “You go home Thursday. And we have a thing up here when somebody leaves. The staff line the hall and you walk out under your own power. Bring whoever you want.”

My family got the first calls.

Mom said she’d pick up a sheet cake with my name in blue icing.

Shauna said she’d bring balloons and get the whole walk on her phone.

Jason said he’d take the afternoon off and give me a ride.

“Two o’clock,” Mom said. “We’ll all be there. I would never do that to you.”

I sent an aide down to the shop on the first floor for a coral lipstick. Fourteen dollars. Two years since I’d spent a cent on my face.

By 1:50 I was sitting on the edge of the bed in real jeans, bag packed, lipstick on.

At 2:06 my phone buzzed three times in a row.

Mom’s came first. I already told you what it said.

Shauna: “my car is making the noise again. you’re FINE, you have like forty nurses”

Jason: “Can’t get out of work. Please don’t do the GUILT thing.”

I dialed my mother. Five rings.

“YOU PROMISED ME, MOM.”

“Oh, don’t start. You got a brand-new kidney. What else do you want, a parade?”

Behind her somebody turned up a song I knew.

Shauna was laughing. Jason was yelling about charcoal.

They were in Mom’s backyard.

All three of them. Eleven minutes away.

I hung up before she could hear what my breathing was doing.

Leilani came in with my discharge folder a minute later.

She’d been my night nurse all nine days. She knew which side I slept on.

She stopped in the doorway and looked at the two empty visitor chairs, then at my mouth.

“Where’s your people, hon?”

“Grilling,” I said.

She put the folder on the tray table and walked out without another word.

Fifteen minutes later both sides of the hall outside my door were full.

Nurses from two shifts. A pair of dialysis techs who’d driven over on their lunch. The man who mopped the floor at night, still holding his mop.

Eleven people. Maybe twelve.

Dr. Valdez stood at the far end with the biggest cup of lemonade the cafeteria sold.

“Forty-four ounces,” he said. “EVERY DROP. That’s an order.”

I walked that hall on my own two feet while they clapped.

By the end I couldn’t see the straw.

Leilani held the cup steady for me. I drank half of it in one pull and nobody said a word about ounces.

Then I rode the elevator down alone to wait for a cab.

I was halfway across the lobby when sneakers came slapping over the tile behind me.

“Margo. Hold up. MARGO.”

Dr. Valdez had taken four flights of stairs. His badge had flipped backward on its lanyard.

My whole body went cold around the incision.

“Is it rejecting?”

“No. Your numbers are perfect. That’s not it.”

He looked back at the elevators, like somebody up there might hear.

Then he took a sheet out of his shirt pocket, folded in quarters, gone soft at the creases.

“I’ve gone back and forth on this since April,” he said. “Your sister came in to be tested as your donor. After today I can’t keep sitting on it.”

The page hung there between us, waiting for my hand.

The corner of the page was shaking.

The lobby, 2:40

I took it before I could decide not to.

The paper was soft as an old dollar bill. I opened it flat against my tote bag, right there in the middle of the tile.

LIVING DONOR EVALUATION, across the top in capitals. Then two lines I read three times.

Donor: Shauna M. Cieslak, 38.

Intended recipient: Margo A. Cieslak, 47.

Under that was a grid of numbers nobody needed to explain to me. Nineteen months in a chair teaches you blood work. Same type. Crossmatch negative. Four of six antigens.

Medical clearance: APPROVED, 4/24.

At the bottom somebody had written one more line in blue ballpoint and put their initials after it.

Withdrawn by donor, 5/6. No medical reason given.

“She was a match,” I said.

“A good one,” Dr. Valdez said. “Better than most siblings. I’ve done this thirty years. The kidney you got is beautiful, and I’d still have taken hers.”

“Why did she stop?”

“I don’t know. Donors don’t owe us a reason. That’s the rule, and it’s a good rule.”

He rubbed the back of his neck where the lanyard had dug in.

“I’m not supposed to have this in my pocket. I’m not supposed to be standing here.”

“So why are you?”

A woman at the information desk had stopped typing. An old man on a bench had his newspaper halfway down.

Dr. Valdez looked at the cabs lined up past the glass, then at the paper cup sweating in my hand.

“Because I read your phone over your shoulder,” he said. “And because she never came in by herself. Not one time.”

I held the lemonade against my chest. The page in my other hand kept moving.

“Who came with her?”

“Your mother sat in our waiting room for every appointment.”

Easter at Mom’s

Easter that year I brought my own cup.

A plastic tumbler with a lid, marked off in ounces with nail polish so I could see where I stood. By two in the afternoon I’d already used eleven.

Mom’s house smelled like ham and the lemon spray she uses on the counters. Jason was on the couch with a game on. Mom was at the stove in a pair of tan compression socks pulled up to her knees.

“Standing at this stove all morning,” she said, when I looked at them. “My ankles swell up like bread dough. Don’t get old, Margo.”

I still had a key to that house. A brass one, with a dot of red nail polish on the head from when I was sixteen and needed to tell it apart from the shed key in the dark.

I let myself in with it that day. I always did.

Shauna came in late. She had on a sweatshirt with the sleeves pushed up, and there was a cotton ball taped to the inside of her left elbow.

“Blood drive at work,” she said, before anybody asked. “They give you a cookie.”

She kissed Mom and didn’t kiss me. That wasn’t new.

At dinner Mom sat across from me with the back of an envelope and a pen.

“Now tell me again,” she said. “The potassium. Bananas, and what else?”

“Potatoes. Tomatoes. Oranges. Avocados.”

She wrote it down. “And the other one. The phosphorus.”

“Dark soda. Cheese. Lunch meat. Anything with a lot of preservatives.”

“Lunch meat.” She shook her head and wrote it. “I want to make you things you can eat. You’re too thin.”

She folded the envelope and put it in her apron pocket.

She never made me a single thing off that list. I didn’t think about it again for six months.

After pie her cousin called from Ohio and Mom took the phone to the hallway. I could hear her the whole time. The house isn’t big.

“Oh, I’m run ragged,” she said. “Between the appointments and the diet and the worrying. You don’t know what it is to watch your child on one of those machines. I’m with her every step.”

Jason turned the game up.

When Mom came back to the table she put a hand on my shoulder, like she was steadying herself.

“You’re young,” she said. “They’ll find you one off the list. Some boy who wrecked his motorcycle. It happens every weekend.”

Shauna got up and started clearing plates. She’d never cleared a plate in that house in her life.

That was April.

In the lobby I looked at the date on the clearance again. 4/24. Then I looked at the date it was withdrawn.

Easter had been the first week of April. The tests come before the clearance.

The cotton ball had been on her left arm, right where they draw.

The cab with the pine tree

The cab smelled like one of those cardboard pine trees. Two of them, actually, hanging off the mirror on the same string.

The driver had a ballgame on low. He asked if I wanted it off and I said no.

I called Shauna before we were out of the parking lot.

She picked up on the fourth ring. I could hear the song again, and the grill lid, and Jason telling somebody the brats were done.

“Margo, I said my car—”

“You were a match.”

Nothing. Then the music got quieter, like she’d walked away from it.

“Who gave you that?”

“Is it true?”

“That’s my medical stuff. Nobody’s allowed to show you my medical stuff. That’s a federal thing, Margo. Somebody can get fired.”

“Four out of six,” I said. “Crossmatch negative. They approved you in April.”

“Who gave it to you?”

“Why did you stop?”

She breathed into the phone for a while. In the background Mom laughed at something, that big laugh she does for company.

“I’m not doing this with you today,” Shauna said. “Today’s not about that.”

“Then what is today about?”

The cab hit a pothole and I put a hand over my incision. The driver said sorry. I didn’t answer him.

“Shauna. What is today about?”

“You got one,” she said. “You got a kidney. You’re in a cab. You’re fine. Can you just be fine?”

“You sat in that waiting room with Mom. Five, six times. She drove you.”

“She drives everybody.”

“She didn’t drive me.”

That was the first time I’d ever said that out loud, to any of them. Nineteen months, and I’d never said it.

Shauna didn’t say anything for so long I checked the screen to see if she’d hung up.

Then I heard a screen door slap and the music came back loud.

“Shauna?” That was Mom, close to the phone. “Who is that? Is that your sister? Give it here.”

“No,” Shauna said. To her or to me, I couldn’t tell.

Then, to me, fast and low, like she wanted it done before Mom reached her:

“Ask Mom what she said to me in the car.”

The form in August

Mom didn’t call that night. She texted.

“Shauna says you’re upset. Get home and rest. You sound hysterical and you just had surgery.”

I was home. My apartment still had a tower of dialysis supply boxes in the corner of the living room, waiting for the company to pick them up. I sat on the floor next to them and finished the lemonade.

All forty-four ounces. It took me an hour.

I put the page in the kitchen drawer with the takeout menus and the warranty for the microwave. Then I took it back out and put it under the sugar bowl where I could see it.

Saturday morning she called.

“Somebody at that hospital broke the law,” she said, instead of hello. “I want to know who. I’ll call the board. I’ll call the newspaper.”

“Did you drive Shauna to her tests?”

“I drive everybody. I drove you to kindergarten. I drove you to your driving test.”

“Why did she withdraw?”

“Because it’s her body.” Mom said it like I’d asked something filthy. “Because it’s major surgery, Margo, and she’s thirty-eight, and she’s got her whole life. Do you know what they do to the donor? They take out a rib sometimes. You want your little sister with a rib out?”

They don’t take out a rib. I’d read every pamphlet the transplant office had. I didn’t say so.

“You had the list,” Mom said. “You were on the list the whole time. And look. You got one. So where’s the harm? Tell me where the harm is.”

“She was a match in April. I did five more months in that chair.”

“And now you don’t. So it worked out.”

I tried the one thing I had.

“Can I come Sunday? Just the four of us. I’ll get a cab. I won’t yell. I want to sit at the table and have somebody tell me what happened.”

“Not this weekend, honey. I’m worn out. Thursday wore me out.”

Thursday. I let that one go by.

“And listen,” she said. “Don’t you forget December. You promised me.”

In August she’d come to my apartment for the only time that whole year.

It was a Tuesday, an off day. My arm was still sore from Monday. She had a clipboard with two pages on it and a pen from her bank.

“It’s for my Medicare supplement,” she’d said. “They want a name. Somebody who’d look after me if I ever had a procedure. It’s nothing. It’s a formality. Who else am I going to put, Jason?”

I signed where she’d made little X’s in pencil. I didn’t turn to the second page. She took the clipboard back before the coffee finished dripping, and she didn’t stay for the coffee.

“December what?” I said now. “What’s in December?”

“You know. We talked about it.”

“We didn’t.”

“A procedure. A small one. It’s nothing for you to worry about with your new kidney.” The doorbell went on her end. I heard it plain. “Oh, that’s somebody at the door. I’ll call you right back.”

She didn’t call back that day, or Sunday.

Jason’s groceries

Jason showed up Monday at noon with two grocery bags and a casserole dish under foil.

“Mom sent this,” he said. “She made it special.”

He put it on the counter. It was still warm on the bottom.

Taped to the foil was a recipe card in Mom’s handwriting. The title at the top said Low Sodium Chicken & Rice (Kidney Friendly), and under it, in the corner, a little page number. p. 41.

Like she’d copied it out of a book.

“She’s never cooked me anything,” I said.

“Well, she did now.” Jason started putting groceries in my fridge without asking where things went. Milk, eggs, a bag of baby carrots. “Can we not do this? I took a long lunch for this.”

“You took a long lunch.”

“Margo.”

“You couldn’t get out of work Thursday.”

He stood there with the fridge door open, the cold coming out around him.

“I said sorry,” he said. He hadn’t. “It was a whole thing Thursday. You don’t know.”

“Then tell me.”

He shut the fridge.

“Let it go, okay? You got your kidney. Why does it matter now who could’ve, who didn’t. Mom’s got a lot going on.”

“What does Mom have going on?”

Jason looked at the casserole. Then at the page under the sugar bowl, which he’d already seen, because he’d been looking at it since he walked in.

“She didn’t tell you.” He said it slow. “She said she told you. She said in August she sat down with you and told you everything.”

“She brought me a form to sign. For Medicare.”

He laughed once, through his nose, and it wasn’t a laugh.

“Jason.”

“Her kidneys,” he said. “Mom’s kidneys. Her doctor found it in March. Stage four, he said. She’s been going to the university hospital across the river every other week.”

I sat down on the arm of the couch. My incision pulled and I let it.

The compression socks. Her ankles like bread dough. The back of the envelope at Easter, potassium and phosphorus, folded into her apron.

“She told me it was her knees,” I said. “She told everybody it was her knees.”

“She didn’t want to take anything away from you. With your stuff.”

“Was Shauna tested for her?”

Jason picked up his keys off the counter. He didn’t look at me.

“You have to ask Mom that.”

“I’m asking you.”

“I’m not in this,” he said. “I got two kids and a job and a boss who counts my lunches. I’m not in any of it.”

He was at the door with his hand on the knob when he turned around.

“She’s had the same thing as you since March, Margo. She’s scared. Eat the casserole.”

The bakery slip

On Tuesday I took a cab to my mother’s house at one in the afternoon.

I knew her week the way you know a bus schedule. Tuesdays she went to the store, then the bank, then lunch with her friend Amina from church. She was never home before three.

Mom’s car was gone. So was Jason’s truck, which was strange for a workday. I didn’t think about it then.

The key with the red dot still worked.

The kitchen was clean except for the grill tools, still soaking in the sink from Thursday. Five days. The water had gone gray.

I opened the fridge.

The sheet cake was on the bottom shelf in its clear plastic box. Half of it was gone. What was left had been cut in a straight line, so the writing on it was cut too.

White frosting. Blue icing. Blue, the way she’d promised.

…ATS MOM & SHAU…

I stood there with the fridge open, the way Jason had stood in mine.

The magnet on the freezer door was from the bakery on Route 9, a little plastic cupcake. Under it was the order slip.

The printed part said: 1/2 sheet, white, blue lettering. WELCOME HOME MARGO. Pickup Thurs 11:00. PAID.

Somebody had drawn a line through WELCOME HOME MARGO. One line. Neat. Then above it, in my mother’s handwriting, the same handwriting as the recipe card:

CONGRATS MOM & SHAUNA 12/9

Under that, smaller, the bakery girl had written changed Thurs AM per customer, and her initials.

On the kitchen table was a folder from the university hospital across the river. Blue, with a white logo. It wasn’t hidden. She’d left it next to the napkin holder like a magazine.

KIDNEY TRANSPLANT PROGRAM. LIVING DONOR RECIPIENT.

Christine R. Cieslak, 71.

I sat down at that table. It’s the one I did my homework at, the one with the burn mark from Jason’s science project.

The first page was a letter. We are pleased to confirm your surgery date of Tuesday, December 9. It was dated the Thursday I walked out. The Thursday I sat on the edge of the bed in my lipstick.

The second page named the donor.

Shauna M. Cieslak, 38. Medical clearance: APPROVED.

Her date for that was in August.

So Shauna got tested in April for me, got cleared, and quit in May. And by August she’d done it all over again, every blood draw and every scan, for Mom.

Mom sat in a waiting room for every one of those too. I’d bet the house on it.

The third page was the one I’d signed in August.

POST-TRANSPLANT CAREGIVER AGREEMENT.

I’d only ever seen the first side. The second side was a list. Available 24 hours a day for a minimum of six weeks after discharge. Medication management. Monitoring fluid intake and output. Transportation to all clinic visits, twice weekly for the first month.

At the bottom of the list was my signature. Under it, the date, in August, the Tuesday my arm was sore.

Every single thing on that list, I’d done for myself for nineteen months. Alone. Measuring ice.

At the top of the page was a phone number for the program’s coordinator. Amanda Morrow, RN. Monday through Friday, eight to five.

It was 2:51.

Out in the driveway, a car door shut. Then another one. Then the third.

The garage door started to go up.

Mom’s kitchen, Tuesday

Mom came in first, with her purse on her arm and a second blue folder in her hand. Jason came in behind her. Shauna came in last and stayed by the door to the garage, where the light was bad.

They’d all been to the same place. I could tell from the visitor stickers still on their shirts.

Mom saw me. Then the cake box I’d left out on the counter. Then the folder.

“What are you doing in my house?”

I didn’t say anything. I put my key with the red dot on the table, next to the folder, where I could reach it.

“Who let you in? Jason, did you give her—”

“She has a key, Ma,” Jason said. “She’s always had a key.”

“Well, she’s got no business in my refrigerator.” Mom put her purse down hard. “I come home from a four-hour appointment, I’m exhausted, my blood pressure is through the roof, and you’re sitting in my kitchen going through my private medical papers. That’s the second time this week somebody’s done that to this family. Somebody at your hospital, and now you.”

“You crossed my name off the cake,” I said.

“Oh, for God’s sake. The cake.” She threw her hands up. “The cake was paid for. Was I supposed to throw a cake in the garbage? The program called that morning. They gave me my date. I’d been waiting since March for that phone call, Margo. Since March. Was I supposed to not have a good day? Is that what you want? I’m not allowed one good day?”

Shauna said, “Mom.”

“No. No, she’s going to hear this.” Mom pulled out the chair across from me and didn’t sit in it. She held on to the back of it. “You know what they told me in March? Seventy-one, they said. Seventy-one, Mrs. Cieslak, with your heart, on the deceased list you might wait five years. Five years. Do I look like I’ve got five years?”

She waited, like I was supposed to answer that.

“You were forty-seven. You were on that list already. You had time. Everybody said you had time. And you got one, didn’t you? You got one off the list in September, just like I told you at Easter. So it worked. It worked for everybody.”

“Mom,” Shauna said again. Louder.

“Your sister wanted to give it to you.” Mom pointed at Shauna without looking at her. “She did. She went in there with a whole folder and she was going to do it. And I sat her down in that car and I said, honey, think. Just think. Who’s going to need it more? Who’s going to get a second chance and who isn’t?”

Shauna had both hands over her mouth now.

“She came to me crying,” Mom said. “She said, Margo’s going to hate me. And I said, Margo is never going to know.”

Jason was looking at the floor. He had his keys in his fist, the way he did when he was a kid and wanted to leave a room.

I took the third page off the pile. The one with my name on it.

Mom saw which page it was. Her whole face changed, then went back.

“And don’t you start with that,” she said. “You’re the only one who can do it. You know it all. The pills, the fluids, the little numbers. You’ve been doing it two years for yourself. You know what to watch for. Jason can’t get off work. Shauna’s going to be in the bed next to mine with a hole in her side. Who else am I going to put down?”

“You told me it was for Medicare.”

“Because you’d have made a scene. Like this. Exactly like this.”

I took my phone out and dialed the number at the top of the page. I put it on speaker and set it on the table between us, on top of the folder.

“What are you doing,” Mom said. “Margo. What are you doing.”

It rang twice.

“Transplant program, this is Amanda.”

“Hi. My name is Margo Cieslak. I’m listed as the post-transplant caregiver for Christine Cieslak. Surgery December ninth.”

“Okay. Give me one second to pull her up.”

Mom came around the table. She reached for the phone and Jason caught her by the wrist. Not hard. He just held it.

“Let go of me. Jason. Let go of me right now.”

“I’ve got her,” Amanda said. “What can I help you with?”

“I need to take my name off.”

Nobody in that kitchen moved.

“Okay,” Amanda said. Her voice didn’t change at all. I could tell she’d had this call before. “I can do that today. I do have to let you know, without a caregiver on file who’s done our class, the surgery date can’t hold. That’s program policy. Nobody leaves here without somebody.”

“She’s lying,” Mom said, at the phone. “She’s my daughter and she’s upset, she just had her own transplant, she doesn’t know what she’s saying. Don’t you take anything off. Do you hear me? I’m the patient. I’m the one talking to you.”

“Ma’am, I’ll need to speak with the caregiver directly.”

“There isn’t one,” I said. “Not me.”

Mom pulled her wrist out of Jason’s hand. She stood over me, close enough that I could smell the hospital soap on her.

“If you do this,” she said, “don’t you come to that hospital. Don’t you come to this house. Don’t you call me on Christmas. You hear me? You’re dead to me if you do this. Over a cake.”

Jason cleared his throat.

“Put me down,” he said.

Mom turned around.

“Hi, sorry,” Jason said, toward the phone. “This is her son. Jason Cieslak. Put me down for it.”

“You can’t get off work,” Mom said. “You told me. You told me a hundred times.”

“I’ll get off work.”

“Six weeks, Jason. Twenty-four hours. You said you couldn’t even get a Thursday afternoon.”

“I know what I said.”

Amanda said the next class was Friday at nine, and he had to be there, and he had to bring the patient. Jason said he would. She read him the address. He wrote it on the back of the cake slip with Mom’s bank pen.

Shauna was crying by the garage door without any sound.

“I signed everything,” she said to me. “In April. I was going to do it. I had the day off picked.”

“I know,” I said. “I saw the page.”

“Who showed it to you?” Mom said. “Tell me who. I’ll have their job.”

I picked my key up off the table. I worked the brass one with the red dot off the ring. It took a while. My hands weren’t good at it.

I set it on the bakery slip, right on top of WELCOME HOME MARGO, and I walked out the front door.

Behind me, Mom was still talking.

“You think you’re so special. You think a hallway full of strangers clapping makes you somebody.”

December ninth

On December ninth I had my three-month check on the fourth floor.

Dr. Valdez said my numbers were the best on his list that week. He didn’t ask about the page, and I didn’t bring it up. He’d never get it back. It was still under my sugar bowl.

On my way out, the hall was empty. Somebody had left a mop bucket against the wall.

Leilani was at the nurses’ station on a double. She saw me and held up one hand, and I held up mine.

I walked the whole hall again. Nobody clapped. I didn’t need anybody to.

At home I took the can of ginger ale out of the fridge. The same one. I’d moved it from my old fridge shelf to the front of the new one, and I’d kept not drinking it, out of habit, I guess, or something worse.

At 2:06 my phone buzzed.

Jason: “Both out. Both ok. Surgeon says it’s working already.”

Then a second one, a minute later.

“She asked if you called. I said no. She said good. Then she cried.”

Then a third. A picture. Shauna in a hospital bed, gray and puffy, her hair stuck to the side of her face, holding her phone up to take it herself. Her eyes were open. She’d typed under it: “i would have picked you.”

I looked at that for a long time.

I typed, “I know,” and sent it.

Then I popped the tab on the ginger ale and drank it standing at the sink, the whole can, without measuring.

If someone in your family ever made you their backup plan, send this to the person who’d understand.

For more stories about people who show up when it matters, read about a brother who spent twenty-two years working the night oven, Chief Burke and the application on his desk, and a grandfather who knelt down to help.